I have finally received my diagnosis for ‘Joint Hypermobility Syndrome’ also known as ‘Ehlers-danlos syndrome’. Im not just clumsy or double jointed, I actually have this. My brother also has EDS but suffers alot more from it. MIne is getting worse as I get older. I guess the thing that worries me the most is passing it on to my daughter as there’s a 50% chance. But I know, even if she had it that myself and my bro would know from experience how to help her. Ive always known Ive had something wrong, so Im not shocked or upset. Im happy I’ve got the diagnosis as it means I can start trying to help the symptoms in the appropriate ways. Im scared what the future may hold. Im scared it might get really bad and i wouldnt be able to walk. I guess I have to take it day by day and accept the support from my family. And hopefully, with research they will one day find out why EDS is caused and maybe how to prevent it!


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